By Brian S. Carter MD FAAP, Marcia Levetown MD FAAP FAAHPM, Sarah E. Friebert MD FAAP FAAHPM
There are few issues requiring extra services, delicacy, and compassion than taking care of an little one, baby, or younger grownup with a life-limiting . Written via prime researchers, clinicians from suitable disciplines, kinfolk, and advocates, this functional advisor offers execs all for pediatric palliative and end-of-life care with complete info in one volume.
Thoroughly up to date and increased, this version contains chapters addressing the original demanding situations dealing with kids with HIV/AIDS and their households, care in domestic and ICU settings, tough decision-making strategies, and the significance of conversation with the kid and relatives, in addition to thoroughly new chapters on religious dimensions of care and academic and advocacy tasks. meant for basic care physicians, pediatric practitioners and experts, domestic care and hospice team of workers, pastoral counselors, and affected households, the ebook contains resource and reference fabric and sensible, hands-on tips.
With contributions from a global staff of specialist educators, clinicians, and fogeys, this booklet takes a very interdisciplinary method of pediatric palliative care, providing most sensible practices, transparent guideline, and the newest details and examine for a person taken with pediatric palliative and end-of-life care.
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E1–2. G. 1983. Death of a child at home or in the hospital: Subsequent psychological adjustment of the family. Pediatrics 71(5):743–47. , et al. 2001. Beneficial effects of a hospital bereavement intervention program after traumatic childhood death. J Trauma 50(3): 440–46; discussion 447–48. , et al. 2007. Characteristics of deaths occurring in hospitalised children: Changing trends. J Med Ethics 33(5):255–60. , et al. 1997. End-of-life care in cystic fibrosis [see comments]. Pediatrics 100:205–9.
Nonmaleficence: the principle that we should avoid causing harm to others. This implies a duty to attempt to recognize when continued disease-directed interventions are likely to cause more harm than benefit to the patient. • Autonomy: the idea that a person’s self-rule be free from both the control of others and personal limitations that interfere with choice, such as lack of knowledge. The principle of autonomy implies that health care professionals have a duty to respect the autonomy of minor patients who have the capacity to make their own decisions, to respect the moral right of parents to participate in medical decisions for their children who do not have capacity, and, where appropriate, to respect the developing capacity of minor patients who are not autonomous by means such as seeking the child’s assent to treatment.
Crit Care Med 21(1):52–55. , et al. 1989. Long-term follow-up of parental adjustment following a child’s death at home or hospital. Cancer 63:988–94. , et al. 1983. A comparison study of parental adaptation following a child’s death at home or in the hospital. Pediatrics 71(1): 107–12. , et al. 2008. Access to care for youth with special health care needs in the transition to adulthood. J Adolesc Health 43(1): 23–29. Lowton, K. 2009. “A bed in the middle of nowhere”: Parents’ meanings of place of death for adults with cystic fibrosis.
Palliative Care for Infants, Children, and Adolescents: A Practical Handbook by Brian S. Carter MD FAAP, Marcia Levetown MD FAAP FAAHPM, Sarah E. Friebert MD FAAP FAAHPM
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