By Heather Widdows, Caroline Mullen
ISBN-10: 0521509912
ISBN-13: 9780521509916
This quantity maps the parts of moral quandary within the debate in regards to the governance of genetic details, and indicates replacement moral frameworks and types of legislation so as to tell its restructuring. Genetic governance is on the middle of clinical and clinical advancements, and is attached to worldwide exploitation, problems with commodification, commercialisation and possession, the ideas of estate and highbrow estate and matters approximately person and communal identification. hence the selections which are made within the following couple of years approximately acceptable types of genetic governance could have knock-on results for different parts of governance. in brief the ultimate resolution to 'Who Decides?' within the context of genetic governance will essentially form the moral constructs of people and their networks and relationships within the public sphere.
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Additional info for The Governance of Genetic Information: Who Decides?
Example text
We talk of people possessing, having, getting, acquiring, sharing, disclosing and passing on information. These are agentive terms, identifying people as entities that are in a position to do something with information. When we convey information we must do so by modifying our material environment. Our material environment becomes a medium of the conveyance of knowledge, or information. , in speech we modify the air around us). But we can also make durable marks on, for example, rock, slate or paper.
The information which is passed from patient to health care professional, or which is generated from investigations of the patient and his body, has to be held in confidence by the health care professional. The health care professional can It is important to distinguish this from a claim based on (genetic) privacy where the claim is that I want to control who knows, because that control is important to me. , as stating that the primary decision maker has an absolute and non-overridable right to control the information.
Communicative information is, rather, what we might call medium indifferent. , speaker and audience; author and reader) have a practical grasp of specific conventions or rules that apply to any of a range of systematic modifications of the material environment. There is a second, distinctive, feature of communicative information. Although it is commonplace to use spatial and material metaphors to talk about information – as something that can be acquired, stored, transmitted, passed on, conveyed and so on – these metaphors fail to register a key difference between material objects and information.
The Governance of Genetic Information: Who Decides? by Heather Widdows, Caroline Mullen
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