Download PDF by Julie Stachowiak PhD: The Multiple Sclerosis Manifesto: Action To Take, Principles

By Julie Stachowiak PhD

ISBN-10: 1932603441

ISBN-13: 9781932603446

Winner of a 2009 Foreword reports publication of the yr Award Written for every body with MS, whatever the sort, severity of signs, gender, age, or time seeing that prognosis, The a number of Sclerosis Manifesto: motion to Take, rules to dwell by means of comprises severe details equipped less than “action” statements and utilizing examples of the way this knowledge can so much successfully be used to assist the readers. writer Julia Stachowiak, who used to be clinically determined with the illness in 2004, has crafted a highway map that not just offers encouragement but in addition deals schooling and motivation for readers. In 12 chapters, Stachowiak covers each point of an activist MS lifestyles, from huge suggestions like gaining self assurance, motivating others, and taking regulate to sensible instruments like developing an MS id, exploring complementary and substitute remedies, and studying concerning the rights and duties that include the . within the method, she deals readers with MS an opportunity to remodel either the scientific and healthcare industries and themselves.

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Additional info for The Multiple Sclerosis Manifesto: Action To Take, Principles to Live By

Sample text

Certainly the experience of MS differs depending on MS type and severity, but we still have a lot in common. We all have MS and it can be terrible in different ways, but we can help each other. What Causes MS? This is perhaps the biggest “I don’t know” aspect of MS. Not only do I not know what causes MS, neither does anyone else. However, with great regularity, readers of my Web site write to me to me, saying, “My MS was caused by surgery (mercury fillings, an accident, aspartame, stress, a vaccine.

Make a list of all symptoms that you have experienced, even if other doctors told you nothing was wrong, or attributed it to something else. Do Your Best Become your own “medical detective” by meticulously recording your medical history, symptoms, and any contributing factors (like stress or poor sleep). Quality of life with MS relies heavily on symptom management, and you may miss opportunities for improvement if you are not paying attention. You will also need to bring all other medical information along, including which prescription drugs you are taking, any medical test results you may have, and other doctors’ findings.

Clearly, some relapses are obvious—when I lost vision in my left eye, I astutely identified that as a relapse. The only way to really know whether you are having a relapse is to have an MRI with gadolinium (contrast material that is injected during the MRI scan). Gadolinium is drawn to areas of inflammation and “lights up” when a lesion is “active,” indicating that demyelination is currently occurring and you are having a true relapse, rather than feeling symptoms caused by older lesions. Because you probably don’t have an MRI scanner at home, there are some questions that you can ask yourself to determine whether this is just “one of those days” or if you need to go see your doctor: You can suspect a relapse if you answer “yes” to the following questions: • Am I experiencing new symptoms or worsening of existing symptoms?

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The Multiple Sclerosis Manifesto: Action To Take, Principles to Live By by Julie Stachowiak PhD


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